Monday, December 7, 2020
In Which I Play Catch Up
Wednesday, October 28, 2020
In Which Squirrelboy is Nominated for the National Honor Society
I was pretty much the ideal student all the way through school. I learned to read mostly on my own in kindergarten, even though reading wasn't formally taught until first grade back in the dark ages of the 1980's. I learned easily in the way that schools teach, and I was eager to learn. I was an excellent test taker. I was polite and never disruptive in the classroom. The only negative comments teachers ever had about me were that I could speak up a little bit more than I did. Even though I am certain I have ADHD, my ADHD had no apparent effect on my school performance at any level. I did miss or come late to class a handful of time in college when I was fully in charge of my schedule, but it's not like that's really weird for any college student. My ADHD didn't really become disruptive until I had lives other than mine to be concerned about (ie, until I became a parent).
Squirrelboy's school experience has not quite been the opposite of mine, but it has absolutely been very different. Because he's generally kind and polite (not always to me and Mr. Engineer, but, hey, he's a teenager) he has usually been well liked by his teachers. However, every single academic thing about school has always been hard for him thanks to his dyslexia and ADHD.
In kindergarten, as I've shared before, his teacher assured us for the first half of the year that he'd catch onto reading eventually. She told us it was common for kids, especially boys, to not really understand reading during the fall of kindergarten but suddenly make a big leap forward in the third quarter of the year. Spoiler alert: Squirrelboy never made that leap.
Once we got the official dyslexia diagnosis, it became abundantly clear that learning to read well would never be a process of leaping for him or of "the turning of a key" as is sometimes described. It would be a process of methodical, tiny steps up a steep hill toward the goal. Though there are schools out there that have the resources and the will to teach students with dyslexia in a way that works for their brains, Squirrelboy's school was not one of them. The way the school was teaching reading was never going to work with him.
Even when we came with this evidence in hand, however, Squirrelboy's kindergarten teacher was insistent that the best possible thing for him was to repeat kindergarten. This despite the overwhelming evidence that the way he was being taught was not appropriate for the way his brain worked. She still thought it would be best for him to spend another year being taught the same things in the same way. You know, the things that didn't work for him the first time.
Fortunately, our school system does not under normal circumstances for students to repeat a grade. They leave that choice up to the parents. We were blessed to be well educated, be native speakers of English, not be minorities, and have personal experience with dyslexia through Mr. Engineer. We insisted that Squirrelboy be passed on to first grade and it happened. First grade was a pretty miserable year learning-wise with a lot of tears, but by second grade, thanks to a lot of hours of tutoring outside of school by experts, Squirrelboy was beginning to catch up.
Even when he was mostly caught up, however, learning in the way the school expected was always an uphill battle for Squirrelboy. He worked ten times harder for any A or B he received than the average student. Homeschooling him for middle school provided a three year breather in which we could forget about grades entirely and focus on helping him enjoy learning again.
When he went off to high school, Mr. Engineer and I were nervous. He still had a serious problem paying attention to details, which showed up in his work. He also did not always seem to care about doing his best work. We thought his first semester of high school might need to serve as a wakeup call for him to always pay attention, do his best work, and ask for help when necessary. Since his school requires students to retake core courses if they don't earn an 83% or higher, we thought he might even have to retake one or two classes.
We were wrong. Squirrelboy immediately cared deeply both about his grades and about working hard to do his best work. He came out of the first semester with three A's and two high B's. He finished the second semester with all A's. So far in his sophomore year he has all A's. I would be among the first to tell you that it's not all about grades. Squirrelboy hasn't only earned good grades. He has invested in his learning, worked on becoming more independent, and learned to advocate and stand up for himself when he needs accommodations because of the way his brain works.
Because I was the perfect student, being nominated and then selected for the National Honor Society was not a surprise to me. It was, however, a huge surprise to Squirrelboy last week when he received an email with an invitation to apply to join the National Honor Society. He's been diligently working on the application, making sure it's his best work and represents not only his academic achievement but his service to his community, particularly through Boy Scouts. I have no idea how competitve the process of admission into his school's chapter of the National Honor Society is. Having the opportunity to fill out the application is not a guarantee that he will get in. However, just being nominated is a huge honor and shows just how far he's come. He's striding toward a successful future. I wish his kindergarten teacher could see him now.
Friday, September 11, 2020
In Which Virtual School is Not the Epic Disaster I Feared It Would Be
When schools were closed here on March 13th, teachers were basically given no notice. The hope was the we would return to school the second week of April after spring break. The district sent home a flyer with suggested activities by grade level, but none of it was required. Kittygirl's teachers sent home their math workbooks and a few other things. Squirrelboy's teachers didn't sent home anything. I actually made my kids do something educational for those first two weeks before spring break, more for my sake than theirs because I didn't want to deal with bored kids all day long. I think most kids played video games for three weeks.
Once remote school, or NTI (nontraditional instruction) as it's called here in Kentucky, did start, it was pretty much a flop. I truly believe the teachers were trying, but they were coming into it with no prep and no training. Kittygirl hated NTI and learned nothing.
As this summer got underway and virus transmission rates went up instead of down, it finally became obvious to the school system that starting school in person was not going to happen. They made a commitment to get Chromebooks for every student in the district (they're still short 10,000, and they started the school year three weeks ago short a lot more because it seems most districts in the nation are ordering Chromebooks right now). They also bought districtwide license for Zoom (which has itself made improvements since the spring) and invested in training the teachers to teach virtually.
We're on day 12 now. It isn't perfect, but it's been a million times better than I thought it would be. One super helpful thing is that I expanded our pandemic bubble to bring in a classmate for Kittygirl. It's a service to her family because both of her parents are working from home and they were going crazy with two kids at home in the spring. It's a service to our family because Kittygirl is more motivated when she has a classmate with her and she has someone to play with on breaks and when she finishes her work. I even got them matching baskets to keep their school supplies in.
They have zoom meetings for most of the morning, starting at 9 and ending at noon, with some breaks in between. Since they attend a Spanish immersion school, they switch off every other day having their primary zoom block with the English teacher or the Spanish teacher. On alternate days they have a shorter half hour zoom with the other teacher. After a break for lunch and recess (the nice playset Mr. Engineer built when Squirrelboy was little is getting more use than it has in years) they have work to do in Google Classroom and/or SeeSaw (another educational platform). They have to spend at least 20 minutes each doing online math and reading, and then they watch a video made by one of the specials teachers and record their own video in response. I also make them read for 20 minutes. All told, they usually about 90 minutes of work in the afternoon, sometimes more if they take forever to to their specials videos. They sometimes to multiple takes because they want them to be perfect. The classmate, whom I have just now decided to name Pandagirl because she's wearing a panda dress today, is picked up at 4pm and they usually have at least an hour after schoolwork is done to play together. Also, every Friday (except today, which they're treating as a Monday because we were off for Labor Day this past Monday) is a catch up day with just one fun zoom meeting, so they normally only have an hour or so of work to finish after that and are done by lunchtime.Tuesday, September 1, 2020
In Which ADHD Looks a Lot Like Irresponsibility
Mr. Engineer and I had a parenting disagreement last night, and the root of it lay in the fact that I have personal insight into the way that Squirrelboy's brain works and he doesn't. It can be difficult and frustrating to explain to your neurotypical spouse why you understand your kid's ADHD brain because yours works similarly. Especially when he seems to willfully not understand that it could possibly be the way the kid's brain works and must simply stem from a lack of discipline. I'm sure Mr. Engineer's position seems difficult to him too. I'm not trying to demonize him. However, the only perspective I can fully understand is my own.
So what happened last night? Squirrelboy likes to listen to books while he falls asleep (not calming books, just whatever he's listening to at the time, which can range from murder mysteries to nonfiction books about racial justice). His accesses these books via an app on his phone. Due to an incident earlier this year his phone charges in our room at night, but he has a bluetooth speaker that can play something from the phone even while it's across the hall in our room.
Last night at bedtime Mr. Engineer noticed Squirrelboy holding his bluetooth headphones instead of his speaker as he set up his book. He asked why Squirrelboy wasn't using the speaker. Squirrelboy explained that his speaker was dead and he wasn't going to wear the headphones but rather set them on the shelf above his head on their loudest setting.
Mr. Engineer was not pleased. He told Squirrelboy that he shouldn't listen to a book if he wasn't responsible enough to charge his speaker. I intervened and told Squirrelboy that he could use the headphones.
Mr. Engineer then asked me something along the lines of, "So, you want to reward his irresponsibility?" He's gotten even more serious than ever lately at wanting to make sure Squirrelboy has the skills to survive as an adult now that he's less than three years away from legal adulthood. I saw the situation differently and replied, "No, what I want to do is not punish him for having a disorderly brain."
What Mr. Engineer saw as a clear indication of irresponsibility I saw as a clear indication of an ADHD brain. If I don't stick exactly to the scaffolding I've built for myself or I haven't built scaffolding for that particular task, I do exactly the same types of things that Squirrelboy does. This is despite the fact that I will soon turn 44 and I've managed to earn two college degrees, hold down a full time job for awhile, and (now) run a household. I like to think I'm a responsible adult, but that hasn't changed the fact that, without serious effort, I make exactly the same types of mistakes that Squirrelboy makes.
I had no idea at the time that this was an indication of ADHD, but an example of the scaffolding I set up for myself early on can be seen in my experience in summer school in high school (FTR, I was taking summer school because my three foreign languages didn't leave room in my schedule for American History and Communications, not because I failed something :)). Summer school started late enough in the morning that both of my parents had left for work before I left the house, in contrast to the school year. Because of this, I forgot to bring my lunch with me three days out of five for the first two weeks. I'd realize it when I was about halfway to the school, turn around to get it, and screech into the school parking lot about a minute before my class started. I knew this was untenable. It would result in me getting a speeding ticket, incurring some kind of penalty for tardiness, or both. So I set up scaffolding for myself. I taped a note to the steering wheel of my car that read REMEMBER TO BRING YOUR LUNCH. I never forgot my lunch for the rest of summer school.
I had to do the lunch note thing again in graduate school after my roommate got tired of driving to campus to bring my lunch at least twice a week (she had a job and worked second shift). It did not occur to me at the time that I was doing something people with ADHD often have to do. I just thought I was unusually forgetful.
I could give you other examples of scaffolding I've set up for myself. Every once in awhile I think to set it up before something goes wrong, but most often it's resulted from many incidents of failure - like establishing one and only one place to keep my keys after losing them nearly every day for years. I still haven't set up scaffolding for keeping track of my phone. I still have to call it using the home phone to find it at least three times a week, sometimes even more than once in a day. It really sucks when I realize I've left it on vibrate.
This probably should have occurred to me earlier, but recently I realized I need to start setting up scaffolding for Squirrelboy and teaching him to do it himself. Maybe if he learns this early on he can prevent himself from, for instance, losing his keys EVERY.SINGLE.DAY for the first two decades of adulthood. Not that I did that ;). Step one today was agreeing with Squirrelboy last night that he should plug in his speaker to charge this morning and every morning so that it would never be dead a bedtime again. I wrote a note on the board, and included taking his medicine, since we both forgot about that yesterday and school was harder for him than it should be. We'll see if this helps.
Thursday, August 27, 2020
In Which I Break All the Diabetes Rules and I Like It
When Kittygirl was first diagnosed with diabetes I was overwhelmed with all the details. Carb counting and insulin ratios were super confusing, and we were told they weren't even going to stay the same all the time. I measured everything, and I mean everything, with carbs, down to how many tablespoons of ketchup Kittygirl was eating. I snuck a measuring cup and a gallon size ziploc bag into the movies in my purse so I could measure exactly how much popcorn Kittygirl was eating the first few times we went to the movies after she was diagnosed. I would do exhaustive online searches for carb counts for restaurant food whenever we ate out and I freaked out if Kittygirl didn't eat every crumb of her meal.
When we had our diabetes education class at the clinic (as opposed to the basic overview we got in the hospital) we were told things that turned out to be kind of conflicting. They said our kids could eat anything as long as we/they counted the carbs and dosed insulin for it. They also said we should try to keep their blood sugar in range as much as possible. The one thing they did caution us against was liquid carbs. In fact, the notes they gave us said in all caps NO REGULAR SODA. They said that the sugar in regular soda acts too fast for the insulin to cover it and that first the child's blood sugar would go high from the soda and then low as the insulin hit and the sugar in the soda was done acting.
Three and a half years into diabetes (which doesn't make me an expert, but whatever) I am here to tell you that I've thrown most of that advice out of the window. The first thing I discovered, after Kittygirl started wearing a Dexcom CGM, was that eating with diabetes and controlling blood sugar is not in any way, shape, or form as simple as counting carbs and dosing insulin before eating. I've learned that different foods act in Kittygirl's body in different ways. You wouldn't think this would be revolutionary, but the average diabetes education class does not make this clear.
Kittygirl still throws back at us the fact that, in the hospital, the nurse told her she could still eat anything as long as she got insulin for it. That was further compounded by the fact that, when I've talked to her classes at school about diabetes I've wanted to emphasize that kids with T1D can, in fact, eat sugar and said that she can eat anything. It turns out that's both true and false, if we want to maintain good blood sugar control. I have yet to find a type of food that Kittygirl absolutely cannot eat in some amount at some time. The big difference is, there are many foods that we only allow in limited amounts at limited times. It's a big science experiment in which we have to figure in the number of carbs in a food or drink, how quickly those carbs will act, what Kittygirl's current blood sugar is, what time of day it is, what else she's eaten that day, how active she's been and is going to be, and half a dozen or so other factors sometimes apparently including the position of Mars in relation to the moon it feels like. This really annoys her.
If all the stars are aligned correctly, we've dosed exactly right, and Kittygirl has not been unusually active or inactive, she can eat a large, dense donut from our favorite local donut shop and only experience a small rise in blood sugar.
If the starts aren't aligned correctly, I dose it wrong, Kittygirl is more or less active than usual, or any one of a dozen or more other things go wrong, Kittygirl's blood sugar may go down to 50 and then up to 350 with one of these donuts.
If I just followed the rules I was taught, however, that would always happen. Unfortunately, the fact that diabetes is best managed dynamically taking a huge variety of factors into account is not often taught. I'm so thankful that we discovered teachers such as Gary Scheiner and Dr. Stephen Ponder early in our journey of parenting a child with diabetes. We are far from perfect, but I think we would be more frustrated and our daughter would have a poorer quality of life and a poorer outlook for her future health if we hadn't done research into good diabetes management ourselves and also if we weren't willing to experiment and learn specific things about how diabetes works for our particular kid,which is not always the same as it works even for another kid of the same age, size, and gender.
Earlier this summer, I even discovered that the all caps NO REGULAR SODA rule can, in fact, be broken under the right circumstances. Now, would I just hand my kid a bottle or can of regular soda with no thought? Of course not, but I've learned that half a bottle of regular soda with a meal does not affect Kittygirl's blood sugar in a significant way. This happened because Ale8, which is a Kentucky staple, produces a special orange cream flavor that's only available in the summer and doesn't make it in diet.
Orange is Kittygirl's very favorite flavor in the whole world and she desperately wanted to try it. I let her have a few sips last summer when the flavor was first introduced, but she wanted her own bottle this summer. I looked at the carbs, thought about it, and decided she could have half a bottle with a relatively low carb meal. It worked well, so we did it again. I now know that even the all caps rule can be broken under the right circumstances.
There are still diabetes rules that can't be broken. You can't not take insulin, even if you eat a very low carb diet. You can't not check your blood sugar if you want to have any hope of keeping it in range. You can't just eat anything you want anytime you want without thinking about it.
You can, however, ignore the old fashioned static management rules that too many endos still teach as long as you replace them with dynamic management rules that actually work better.
Tuesday, August 4, 2020
In Which Virtual Is Actually Pretty Good
FFL was just one of several positive virtual experiences we've had this summer. Kittygirl also did a virtual diabetes camp that was surprisingly good. The week of the virtual FFL conference and for a week after that we were isolating as much as possible so we could safely visit my parents, so we signed each kid up for a week of virtual camp the second week. They were both excellent.
Monday, July 13, 2020
In Which I Propose a Completely Unrealistic Plan for Education During the Pandemic
In Which Squirrelboy is a College Student, And I'm Not Done Parenting, But Basically Done Blogging
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It's Valentine's Day again, and that means it's time for my annual Valentine homily. In case you're new to this, or you'...
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Mr. Engineer grew up in Wisconsin. I grew up in Michigan. By a strange twist of fate, we met shortly after moving to Kentucky separately, an...











